Please use this identifier to cite or link to this item: https://hdl.handle.net/10419/254269 
Year of Publication: 
2022
Citation: 
[Journal:] Internet Policy Review [ISSN:] 2197-6775 [Volume:] 11 [Issue:] 1 [Publisher:] Alexander von Humboldt Institute for Internet and Society [Place:] Berlin [Year:] 2022 [Pages:] 1-25
Publisher: 
Alexander von Humboldt Institute for Internet and Society, Berlin
Abstract: 
In May 2021, the UK National Health Service (NHS) proposed a scheme-called General Practice Data for Planning Research (GPDPR)-for sharing patients' data. Under that system, a patient who does not wish to participate must actively opt out of their data being shared with third parties for research and other purposes. In this paper, we analyse the lessons that can be learned for the responsible and ethical governance of health data from the NHS' new scheme. More specifically, we explore the extent to which the opt-out within the planned scheme complies with the requirements stemming from the General Data Protection Regulation (GDPR), particularly in relation to the principles of lawfulness and transparency. We then evaluate, from an ethical perspective, this opt-out 'nudge' and whether it is sufficiently resistible, reversible, and has appropriate goals. In light of the above, we then propose improvements for the scheme's legal and ethical acceptability.
Subjects: 
Ethics
Data protection
Health
Big data
United Kingdom
Persistent Identifier of the first edition: 
Creative Commons License: 
cc-by Logo
Document Type: 
Article

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