Please use this identifier to cite or link to this item: https://hdl.handle.net/10419/247425 
Title (translated): 
Health Data as a Public Good
Year of Publication: 
2021
Citation: 
[Editor:] van der Eijk, Philip [Editor:] Ganten, Detlev [Editor:] Marek, Roman [Title:] Was ist Gesundheit? Interdisziplinäre Perspektiven aus Medizin, Geschichte und Kultur [ISBN:] 978-3-110-71333-6 [Series:] Humanprojekt [No.:] 18 [Publisher:] De Gruyter [Place:] Warsaw, Berlin [Year:] 2021 [Pages:] 363-375
Publisher: 
De Gruyter, Warsaw, Berlin
Abstract: 
Routine health data, which are collected by health insurers and other agencies in the health care system, offer enormous potential for health monitoring and research. Germany has been slow to make such data available for socially beneficial purposes, partly due to concerns about privacy and data protection. Against this background, we discuss some of the most important potential uses of routine health data and call for a broader societal debate about the benefits, risks, and appropriate regulation of routine health data usage.We then review the Western Australian Data Linkage System as an example of a data infrastructure that is characterized by high levels of stakeholder and patient involvement and a sophisticated method of privacy protection. While Germany does not need to copy this approach, we hope that the experiences of Western Australia and other countries will stimulate and inform the overdue debate about a modern, responsible, and sustainable approach to socially beneficial health data usage in Germany
Persistent Identifier of the first edition: 
Creative Commons License: 
cc-by-nc-sa Logo
Document Type: 
Book Part
Document Version: 
Published Version

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