https://hdl.handle.net/10419/65668 Mon, 21 Sep 2026 12:53:08 GMT 2026-09-21T12:53:08Z http://econstor.eu:80/retrieve/4eab4ac7-e2fc-45ca-b447-49fa6822ea18/hche-logo.jpg https://hdl.handle.net/10419/65668 https://hdl.handle.net/10419/341983 Title: Stigmatisation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): A scoping review Authors: Vester, Patricia; Boudouroglou-Walter, Stefanos; Wieting, Chantal; Schreyögg, Jonas; Dammann, Niklas; Feißel, Annemarie; Piontek, Katharina; Blome, Christine Abstract: Objective: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a severe chronic, multi- systemic disease characterised by post-exertional malaise (PEM), cognitive impairments and pain. There is no curative treatment yet. Stigmatisation is prevalent in several chronic illnesses, impacting patients' quality of life and health outcomes. This review aims to examine the types and effects of stigmatisation experienced by individuals with ME/CFS. Methods: This scoping review followed the PRISMA-ScR guidelines. A systematic literature search was executed across six electronic databases, complemented by citation searching. The screening was performed independently by two researchers. Results: We included 44 studies in this review. The most commonly assessed type of stigma was perceived stigma (n = 7); however, the majority of studies (n = 33) did not specify the type of stigma assessed. Our findings showed that not only individuals with ME/CFS can be affected by stigmatisation, but also people in their social circles such as friends and family members. Stigmatisation was reported in various areas of life, but the most frequently identified issue were stigmatising experiences by healthcare professionals such as physicians. Stigmatisation was found to contribute to poorer health outcomes, delays in diagnosis, and broader personal and societal consequences. Conclusion: Individuals with ME/CFS can be profoundly affected by stigmatisation. Further research should investigate experiences of children and (very) severely ill patients. Research is also needed to develop strategies to reduce stigmatisation in healthcare and other settings and to improve the quality of care for individuals with ME/CFS. Thu, 01 Jan 2026 00:00:00 GMT https://hdl.handle.net/10419/341983 2026-01-01T00:00:00Z https://hdl.handle.net/10419/319650 Title: Cash or care? Insights from the German long-term care system Authors: Kesternich, Iris; Romahn, André; Van Biesebroeck, Johannes; van Damme, Marjolein Abstract: The German universal long-term care (LTC) insurance program offers beneficiaries the choice between in-kind services and a cash benefit, which can be used for anything, including informal care. The optimal level of the cash benefit de- pends on substitution between formal and informal care options, the cost of public funds, and distributional considerations. To evaluate various policy options, we estimate a randomcoefficients demand model for the period 1999-2015 using data on the universe of LTC patients supplemented with micro moments from the German Mikrozensus. Results show strong heterogeneity in patient preferences for the three different LTC options: informal, ambulatory and stationary care. Acounterfactual analysis predicts that abolishing the cash subsidy leads to a decline in patient sur- plus that far outweighs the savings in public expenditure. It suggests that many countries could benefit from the introduction of a cash subsidy option for LTC. Wed, 01 Jan 2025 00:00:00 GMT https://hdl.handle.net/10419/319650 2025-01-01T00:00:00Z https://hdl.handle.net/10419/329767 Title: Effizienzpotenziale einer Reform der Notfallversorgung: Quantifizierung auf Basis verfügbarer Daten Authors: Schreyögg, Jonas; Messerle, Robert Abstract: Die Struktur der Notfallversorgung in Deutschland muss grundlegend verbessert werden, darüber besteht weitgehend Einigkeit. Seit spätestens 2018 und dem Gutachten des SVR Gesundheit wird intensiv ein in den Grundzügen unveränderter Reformvorschlag diskutiert. Über das Stadium eines Gesetzentwurfes kamen die Reformideen bisher jedoch nicht hinaus. Dabei ist das Potenzial, dass eine solche Reform heben könnte, erheblich, wird in der Diskussion aber oft vernachlässigt. Im Folgenden soll eine Abschätzung der finanziellen Auswirkungen einer umfangreichen Reform der Notfallversorgung versucht werden. Wed, 01 Jan 2025 00:00:00 GMT https://hdl.handle.net/10419/329767 2025-01-01T00:00:00Z https://hdl.handle.net/10419/284369 Title: The European COvid Survey (ECOS): Technical report Authors: Sabat, Iryna; Neumann-Böhme, Sebastian; Stargardt, Tom; Schreyögg, Jonas Abstract: European COvid Survey (ECOS), a longitudinal study spanning eight European countries, was initiated early in the COVID-19 pandemic. Its purpose was to comprehend public perceptions, trust, knowledge, and behaviors related to COVID-19, including vaccination. The study aimed to enable timely monitoring and assess relationships between these variables, producing evidence for policy and research in Europe. ECOS pursued a dual objective: first, conducting quick descriptive analyses at the end of fieldwork to produce policy-relevant evidence and share timely findings on sentiments toward containment policies, vaccinations, and vaccine types through press releases and events. These findings were valuable as they were both prompt and representative of national populations. Second, ECOS aimed to address health-economic research questions for an academic audience, utilizing advanced analytic methodologies. The resulting data-based research from ECOS provided an empirical foundation to understand longitudinal phenomena and relationships, contributing to a deeper comprehension of socioeconomic processes and behaviors during the COVID-19 pandemic. Importantly, it offered informed findings for policymakers to shape effective responses and policies. This technical report provides an account of the design, development, and methodology of 11 data collections henceforth referred to as waves of the survey, which were fielded between April 2020 and December 2022. Mon, 01 Jan 2024 00:00:00 GMT https://hdl.handle.net/10419/284369 2024-01-01T00:00:00Z